It is so nice to be home. Our house is still covered in boxes and we a total mess but it is still nice :)
Owen went in for his MRI right on time at Noon our time (it was a MIRACLE that they were on time, it happens like once a year!) and it went pretty smooth. I was able to go back into the MRI room with him and be with him while he was sedated. It was really hard for me, he hated having the gas and was freaking out trying to get away but I just held his hands and told him it was okay and I loved him. He was just staring at me and crying HARD like he was wondering why I was doing this to him :( He went to sleep pretty easily and they made me leave. We went and got Emma some ice cream and played some video games waiting for the scan to be complete. They came and got us about an hour later and lead us back to his recovery room. A nurse was holding him when we got there and I took him from her and he didn't want me... that has never happened before. He fought me a lot and wanted the nurse to hold him. He was still really groggy and seemed like he wanted to eat -- he couldn't have any table foods at all before the scan and couldn't nurse past 8am so it had been a while since he had anything to eat at all.
They told us that he may be really sleepy through out the day and not be able to walk well or anything. Well, not our Owen. Not an hour later he was eating, playing with Emma and walking all around our room! He doesn't sit still for anything! About three hours later they came in and told us that the MRI WAS COMPLETELY NORMAL! His brain is perfectly formed, has no structure issues and no masses, tumors or anything else! What an amazing feeling it is to KNOW that he is okay! We talked with the Pediatric Attending and the head Neurologist about the findings of the MRI and EEG to determine what we do now.
Here is an overview of everything we have determined. Owen had two "episodes" brought on by breath holding events that are not being considered true seizures. The second episode has more characteristics of a true seizure but still may not have been one. The EEG findings are not of consequence by themselves but may signal a precursor to developing epilepsy. We all have a "seizure threshold" and Owen's may have been lowered by the stomach virus and that is why holding his breath made him seize, we just aren't sure. They gave us a medication that will stop a true seizure if he should have one that lasts more then 5 minutes.
The neurologist said that he has a 5% chance of having a true seizure. If the second incident was infact an actual seizure, his chances of having another one are about 30%. I can live with those odds! We will go in at the end of April to have another EEG done to see if he still has those "spikes". If they aren't there, there is no reason to beleive he should EVER have another seizure.
We have the worlds worst luck when it comes to having things happen that are just random things, that could happen to anyone. Emmas stuttering, these seizures, are all things that can happen to any child at any time, but they seem to happen to us.
Friday, February 6, 2009
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1 comment:
I am so glad that Owen is doing okay. You guys have had crazy things happen to you since Owen has been born. I hope this is the end of it! I have been so worried about Owen! I am sure it gives you a great perspective on what is really important. We love you all and our thoughts and prays are continually with you all. Love, Sarah and family
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